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Listed Patients


 
What happens after Listing?

Listed patients attend physiotherapy sessions at Toronto General Hospital three times per week
Patients are seen in clinic every 1-2 months.

Upon listing, patients receive a pager and may be called in for transplant at any time.

We generally expect patients to stay within 2 hours' drive of Toronto while listed.  Due to changes in donor organ management, we can consider permitting some stable status 1 patients to remain at a greater distance while on the waiting list, however this must be assessed on a case by case basis.  We expect all patients to remain in the Toronto area for the first month after listing, with at least monthly visits to Toronto while on the list. 

Following lung transplantation, all patients without exception are required to remain in the Toronto area until they have completed their 3 month assessment.


Medical Follow-up

Patients on the lung transplant waiting list continue to follow up with their local respirologist.

Patients relocating to Toronto will be followed in the pre-transplant clinic.  In order to provide optimal care it is essential that we receive a detailed summary of the patients active medical issues, current therapy, and treatment plan at the time of relocation.

Patients relocating for listing need to find a family physician in Toronto to look after their general medical issues. 


Waiting List Status

Stable patients are listed as "status 1". 

Patients who are deteriorating or more ill may be listed as "status 2" in an effort to expedite transplant.

Patients who are in urgent need of a transplant may be listed as "status 3" or rapidly deteriorating.

Median time on the waiting list is approximately 6 months. However some patients can wait considerably longer.  This can be related to unusual size, uncommon blood type, a high Panel Reactive Antibody, a more complex anticipated procedure (i.e.heart-lung), or to random factors.
 
 
False Alarms

Patients are called in for transplant while the donor lungs are being retrieved and assessed. 

Patients need to be mentally and emotionally prepared for the possibility that the lungs will be deemed unsuitable for transplant and the operation will be cancelled, as this is a frequent occurrence.

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